Monthly Archives: August 2013

The Beginning for Baby G

My desire to move into the natural realm of treating our children, away from main-stream American medicine, was solidified during the very difficult first 4 months of Baby G’s (my 4th child) life.

Baby G was born absolutely perfect in January 2012. Well, she was jaundice and 4 weeks early…but nearly perfect. Within 4 weeks after birth, she had a pretty bad rash all over her body and face. So, when we went in for her 2nd HepB vaccine at 4 weeks old, I asked her doctor to check it out. He said it was a “normal baby rash,” and that I did not need to worry or do anything to treat it. My baby’s doctor then proceeded to give her the Hepatitis B vaccine as scheduled. A few days later, Baby G started to scream and cry….24 hours a day…7 days a week. I learned why the word “inconsolable” was added to language… because there was no amount of holding, rocking, or singing that would soothe her. My baby girl was in obvious pain and enduring terrible reflux as well. Our family doctor prescribed Zantac for Baby G, but it was not making a dent in her suffering.

After about 2 solid weeks of screaming, The Lord led me to Dr. N. When I say the Lord led me, that is ABSOLUTELY what happened. I was standing in the park watching 3 kids play while holding a screaming baby. I began to cry and asked God, “what am I going to do?” Not audibly, but crystal clear nonetheless, He said “take her to the new man doctor at Dr. B’s office.” I called and they worked her in immediately. At that time, the typical wait for a new patient to see this new man doctor was several months. At our first appointment, I realized this doctor was different when he inquired as to WHY Baby G had the reflux instead of just thinking of a way to treat her symptoms. After examining her skin, looking in her mouth, and smelling her, he said she had a yeast infection, and he prescribed Diflucan (an anti-fungal) for her. He also said that it was imperative that I get her off the Zantac as changing her pH could lead to a host of different problems. At our next appointment with our new doctor, and 8 weeks on Diflucan, I came to a shocking realization when Dr. N said he was glad I was bringing Baby G to him instead of a traditional doctor, due to the normal vaccination schedule…my heart sank. He informed me that the Hep B vaccine is cultured in yeast, so if she were vaccinated in her current condition, it would be devastating to her recovery. I let him know that she already had the vaccine at her 4 week appointment. That’s when he took this photo of her head – he was connecting the vaccine to this yeast infection.

Baby G yeast on head

Then I went home and remembered she had the Hep B vaccine in the hospital at 3 days old too. Oh my! No wonder she couldn’t shake the yeast infection! She was double vaccinated so close together! Still unbelievable to me, this is the recommended schedule for a perfectly healthy little baby.

I called Dr. N, and he recommended a clay packing – vaccine detox. Looking back, I realize she had a yeast rash after the first Hep B vaccine, and after the 2nd dose the yeast infection was completely out of control. She was red and rashy all over, inside & out. No wonder she wouldn’t stop screaming.

Thankfully, after about 10 weeks of screaming, Baby G received healing from the horrible yeast infection. The old Christine would have never even tried the clay packing – vaccine detox, but the end-of-her-rope Christine was willing to try anything! I called my friend Courtney to ask her if I should do it, and praise God, she said she would do it. I asked Dr. Shelton if she would do it, and praise God, she recommended we do it too. By His grace, I walked into that office with an open mind. Once the “mudding” was complete, my baby rested for the first time in months. Baby G was healed with mud and lavender oil, which I was spraying on her raw head 6-8 times per day. Diflucan and Nystatin couldn’t put an end to the yeast infection. It took mud and oil.

The lessons learned in the first part of her journey: Natural options work! A c-section baby needs probiotics, since God’s plan is for a baby’s gut to be populated with good flora on the way out of the birth canal. A jaundice baby’s liver is not functioning at full capacity yet, so she may not be equipped to receive vaccines yet. If the skin is unhealthy so is the inside of the body.

While the yeast infection was healed, this is just the beginning of Baby G’s difficult story…it’s a hard one for me to tell. It involves lots of screaming and no more than a couple hours of sleep at a time for 16 months. However, we have been blessed to witness an awesome miracle – Baby G is like a whole different baby now. Once again, there is hope for every child!

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“I can’t! I’m old!”

What a great morning we were having last week. Things were going so well with J, Baby G, G & MK that I thought we should have a treat and go out to lunch.  You moms who have kiddos with special needs know how hard it is to get out.  The only place I would consider taking my crew for lunch is Fuddruckers because it’s laid back, they have games for the kids, & they have gluten-free hamburger buns!

The kids were so excited to be “out” to lunch!  I must say that I got caught up in the excitement and let the kids grab their cups from me.  They have the new soda machines, the ones where there are a million choices…. I got to the machine in time to put half water in G & J’s cups but let them make their choice for drink.  J picked MinuteMaid “strawberry lemonade.” I put –strawberry lemonade- in quotes, because there’s no strawberry or lemon in it at all! 0% juice – high fructose corn syrup, chemicals, and red dye.  Following my request, “please don’t suck it down until after you eat your food,” J drank his entire drink.  We’re still working on obedience!  I’m sure the drink tasted like candy to him as he never gets anything like that.  So, needless to say, he didn’t get much lunch eaten.  He bounced from table to games and back.

After about an hour in the restaurant, we loaded in the van to go home.  As I’m pulling out, I confirm that all seat belts are buckled.  Thankfully G & J have been buckling their own seatbelts for a year now.  No, J is not buckled.  Determined not to get miffed, I calmly ask J to buckle his seatbelt once again.   He’s looking at the seatbelt and says to me in an unsure voice, “I can’t.  I’m old.” I don’t think much of this statement at first, and firmly tell him: You are 5 years old.  You have been buckling your own seatbelt for over a year. Please buckle.  Then he starts to get frantic and yells, “I can’t! I’m old!” He was unable to connect the clip with the buckle.  His brain could not process the simple task that he had doing for a long time. After several outbursts of the same words “I can’t! I’m old!” his big sister got up to buckle him.  And, then it hit me.  The drink had made him unable to function.  What was he feeling in that moment to tell me that he’s old??  He must have been frightened.  How many times have I fussed at him when it was me who gave him something to cause his brain to malfunction?  Never again will I let my children drink the poison.

Then my heart and mind naturally go to other kids….the kids whose moms and dads are still buying Capri-sun, Hi-C, and the like.  They don’t know the impact the corn-syrup, chemicals, and dyes are having on their children’s brains.  Some kids get “juice” boxes with their lunch every day.  Even if the reaction is not as intense as my J’s – the impact is certainly a reduction in the child’s potential.

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Filed under Beginning, Gluten free, J, Nutrition, sensory integration

Nutritionally depleted

I brought J in for a re-evaluation with Dr. N in May.  During the physical exam, J’s pupils did not respond to light – This was very scary to me….I’m thinking his brain is damaged!  Dr. N ordered an MRI to check J’s brain.  In addition to the MRI, a NutrEval was ordered along with other standard tests and a genetic test to evaluate his methylation pathway — a ton of labs.  We were so thankful to have all that blood drawn while J was sedated for the MRI.  We heard within a couple of days that the MRI came back normal.  Praise God!  We can’t be sure, but my guess is that J must have been in “fight or flight” mode – really scared in the dark room for his pupils to remain dilated like that.

We had to wait nearly a month to get other results.  J’s nutritional evaluation came back showing him to be extremely depleted.  His brain was starving for fuel!  I can honestly say J is my best eater and I feed him good food.  So, when you get results like this you have to fight the guilt.  This is not my fault.  It has to be a gut issue or a need issue – some kids need a lot more support than other kids.  Thankfully, I have remained extremely faithful with the fish oil (we are using the doTERRA IQmega liquid – I put about a teaspoon into the kids orange juice each morning), and his omega 3 levels looked great!  Well I won’t bore you with all the details, but the following levels were EXTREMELY low: Vitamin C, alpha Lipoic Acid, Thiamin-B1, Riboflavin-B2, Magnesium, and Zinc.  This test, the NutrEval, gives recommendations for supplement levels.  I jumped on it that very day mixing up a concoction in J’s orange juice.  Can you even believe that just 2 short days later, J started coloring in the lines?  Previously, we hardly saw anything but wild scribbling, and at OT, his therapist was amazed at the change in J.  On the 4th day after we began the supplementing, I saw him lying on the floor with a pencil and paper drawing a very detailed rocket!!  When the change is so drastic, it makes you marvel.  What if we hadn’t done that testing? His brain was not getting the nourishment it needs – no fuel – no performance.  It feels amazing to make this forward progress.

The testing also revealed that J has a severely compromised methylation pathway and blood sugar regulation issues.  J’s zinc levels are very low which can alter neurotransmitter synthesis.  Now we have done more genetic tests that are, again, quite revealing.   What is neurological inflammation, what causes it, and what can be done?? J’s glutamate levels were extremely high.  What is that doing?  Like I said, it’s been a whirlwind since I last posted on this blog.  I’ll do my best to fill you in soon because it’s all so important.   Stay tuned.  There is hope for every child!

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Sensory Integration

So much has happened with J and Baby G in the last 6 months, hence the long delay since posting.  The Speech therapist we saw in December recommended we get an OT evaluation on J. So, we did that in January.  A gift straight from the Lord – a very thorough & smart Occupational Therapist checked out my little man.   Among several problems that she picked up, she noted that J’s left eye was not tracking with his right eye.  She immediately referred us to a developmental optometrist.

Another blessing – Dr. A is a very caring, patient, and smart doctor!  This appointment led us down a route of investigation that I hadn’t dreamed of.   Dr. A initially had us try patching his left eye for 4 hours per day and his right eye for 2 as both eyes were very weak and unable to track together.  We did this for 12 weeks, and unfortunately J’s eyes did not improve with the patching therapy.  We then ran a Platform Posturography test on J, which was incredibly revealing.  The human body relies on information from 3 systems: the visual system (eyes), the somatosensory system (muscles & joints) and the vestibular system (inner ear-balance). Normally the systems work together to provide information to your brain about how you keep upright and balanced as you move through space.  The test isolates the systems and determines how they function as a unit.  J had better balance with his eyes closed and his muscles & joints disengaged.  His eyes, muscles, and joints are throwing him off?!?  This explains so many things…  Since he relies mainly on vestibular stimulation to determine his place in space, he’s got to have that vestibular fluid always swishing around.  His constant need for motion – there it is – that’s why!  The constant request by us for him to hold still is so unrealistic – he’s disoriented if he’s not moving. Geez, no wonder he falls out of chairs, he’s always moving to keep the fluid rocking in his ears.  These findings are a bit overwhelming as the thought of years of sensory integration therapy is daunting.  But, oh how sad it makes me to think that other kids like J are medicated to make them hold still when they NEED to be moving!!  There is hope for every child!

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