Category Archives: sensory integration

PANDAS

3 weeks ago we heard from Dr. N that J has extremely high strep titers. He has PANDAS (pediatric auto-immune neuropsychiatric disorder associated with strep). This auto-immune disorder is responsible for all kinds of behavioral issues, from ADHD & tics to OCD & emotional lability and everything in between. Could it be that PANDAS has been contributing to my J’s struggles for years?? Could this be another major piece of his puzzle?  Well, Praise God, I am beside myself right now thinking back over the last few days. The very day that we got the PANDAS news, I started J on OnGuard Plus. I actually know 3 families that have dealt with this nightmare before me, and I know that antibiotics are typically prescribed for very extended periods of time. Well, we can’t do that with J. His gut is too inflamed. So, what do I have in my all-natural medicine cabinet for my little buddy – OnGuard Plus. It contains the doTERRA essential oils of On Guard, oregano, melissa, & black pepper. I’ve been giving it to him 3 times per day for the last 3 weeks. I noticed the change in J on Thursday afternoon. We were alone in the van on the way to see Dr. N. J talked the entire trip about ideas for his birthday party, about a hunting trip he’d like to go on with dad where he would hunt for bears not wild hogs, about his school day… Just talking – at a level I had never talked with him before. This new pattern has continued through the weekend. We saw him voluntarily walk away from the Wii & dig out a traffic puzzle game and work on it for 45 minutes. The focus he demonstrated floors me. He did all kinds of pretending with G today. So fun, like neurologically normal little people! Please Lord, may these positive changes continue…

J - 3 weeks on On Guard Plus

On Guard Plus is anti-viral & anti-bacterial with many additional side benefits – like the power of melissa on brain function.  We are just so thankful for our oils!!

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Filed under Essential Oils, J, PANDAS, sensory integration, Uncategorized

“I can’t! I’m old!”

What a great morning we were having last week. Things were going so well with J, Baby G, G & MK that I thought we should have a treat and go out to lunch.  You moms who have kiddos with special needs know how hard it is to get out.  The only place I would consider taking my crew for lunch is Fuddruckers because it’s laid back, they have games for the kids, & they have gluten-free hamburger buns!

The kids were so excited to be “out” to lunch!  I must say that I got caught up in the excitement and let the kids grab their cups from me.  They have the new soda machines, the ones where there are a million choices…. I got to the machine in time to put half water in G & J’s cups but let them make their choice for drink.  J picked MinuteMaid “strawberry lemonade.” I put –strawberry lemonade- in quotes, because there’s no strawberry or lemon in it at all! 0% juice – high fructose corn syrup, chemicals, and red dye.  Following my request, “please don’t suck it down until after you eat your food,” J drank his entire drink.  We’re still working on obedience!  I’m sure the drink tasted like candy to him as he never gets anything like that.  So, needless to say, he didn’t get much lunch eaten.  He bounced from table to games and back.

After about an hour in the restaurant, we loaded in the van to go home.  As I’m pulling out, I confirm that all seat belts are buckled.  Thankfully G & J have been buckling their own seatbelts for a year now.  No, J is not buckled.  Determined not to get miffed, I calmly ask J to buckle his seatbelt once again.   He’s looking at the seatbelt and says to me in an unsure voice, “I can’t.  I’m old.” I don’t think much of this statement at first, and firmly tell him: You are 5 years old.  You have been buckling your own seatbelt for over a year. Please buckle.  Then he starts to get frantic and yells, “I can’t! I’m old!” He was unable to connect the clip with the buckle.  His brain could not process the simple task that he had doing for a long time. After several outbursts of the same words “I can’t! I’m old!” his big sister got up to buckle him.  And, then it hit me.  The drink had made him unable to function.  What was he feeling in that moment to tell me that he’s old??  He must have been frightened.  How many times have I fussed at him when it was me who gave him something to cause his brain to malfunction?  Never again will I let my children drink the poison.

Then my heart and mind naturally go to other kids….the kids whose moms and dads are still buying Capri-sun, Hi-C, and the like.  They don’t know the impact the corn-syrup, chemicals, and dyes are having on their children’s brains.  Some kids get “juice” boxes with their lunch every day.  Even if the reaction is not as intense as my J’s – the impact is certainly a reduction in the child’s potential.

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Filed under Beginning, Gluten free, J, Nutrition, sensory integration

Sensory Integration

So much has happened with J and Baby G in the last 6 months, hence the long delay since posting.  The Speech therapist we saw in December recommended we get an OT evaluation on J. So, we did that in January.  A gift straight from the Lord – a very thorough & smart Occupational Therapist checked out my little man.   Among several problems that she picked up, she noted that J’s left eye was not tracking with his right eye.  She immediately referred us to a developmental optometrist.

Another blessing – Dr. A is a very caring, patient, and smart doctor!  This appointment led us down a route of investigation that I hadn’t dreamed of.   Dr. A initially had us try patching his left eye for 4 hours per day and his right eye for 2 as both eyes were very weak and unable to track together.  We did this for 12 weeks, and unfortunately J’s eyes did not improve with the patching therapy.  We then ran a Platform Posturography test on J, which was incredibly revealing.  The human body relies on information from 3 systems: the visual system (eyes), the somatosensory system (muscles & joints) and the vestibular system (inner ear-balance). Normally the systems work together to provide information to your brain about how you keep upright and balanced as you move through space.  The test isolates the systems and determines how they function as a unit.  J had better balance with his eyes closed and his muscles & joints disengaged.  His eyes, muscles, and joints are throwing him off?!?  This explains so many things…  Since he relies mainly on vestibular stimulation to determine his place in space, he’s got to have that vestibular fluid always swishing around.  His constant need for motion – there it is – that’s why!  The constant request by us for him to hold still is so unrealistic – he’s disoriented if he’s not moving. Geez, no wonder he falls out of chairs, he’s always moving to keep the fluid rocking in his ears.  These findings are a bit overwhelming as the thought of years of sensory integration therapy is daunting.  But, oh how sad it makes me to think that other kids like J are medicated to make them hold still when they NEED to be moving!!  There is hope for every child!

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Filed under J, sensory integration, Uncategorized